The 2025 HDSA Team Hope Walk – Naperville, IL, will be among many walks that step off from the Naperville Riverwalk Grand Pavilion in the coming months to heighten awareness and raise funds for various causes. (PN File Photo)
2025 HDSA Team Hope Report
The Illinois Chapter of the Huntington’s Disease will host the 2025 HDSA Team Hope Walk on Sun., May 18, at the Naperville Riverwalk Grand Pavilion, located at 912 Honorary Sindt Memorial Court, just off Jackson Avenue.

Registration starts at 9:30AM and the event starts at 10:30AM. All proceeds support HDSA’s mission to improve the lives of people affected by Huntington’s disease (HD) and their families.
Team Hope is HDSA’s largest national grassroots fundraising event, which takes place in over 100 cities across the U.S. and has raised more than $28 million for HD since its inception in 2007. Thousands of families, friends, co-workers, neighbors, and communities walk together each year to support HDSA’s mission to improve the lives of people affected by HD and their families.
For more information about the event, contact Lillie Paxson at lilliepaxson@gmail.com.
Online registration and donation information can be found HERE.
HDSA’s Team Hope Walk Program is nationally sponsored by Neurocrine Biosciences and Teva Pharmaceuticals.
Huntington’s Disease Awareness Month: A Month-Long Campaign to Educate and Empower
Celebrate and Raise Awareness with HDSA
The Huntington’s Disease Society of America (HDSA) is proud to mark 33 years of Huntington’s Disease (HD) Awareness Month, a nationwide initiative dedicated to educating the public and empowering families impacted by this devastating hereditary neurodegenerative disease. Throughout the month of May, HDSA will lead a series of educational programs, fundraising events, and community gatherings designed to raise awareness and offer support to those affected by HD.
This May, HDSA invites you to join and turn up the volume on HD by participating in one of the many HDSA events happening across the country. Every walk, fundraiser and awareness event helps not only spread the word about HD but also raises vital funds to support HDSA’s mission programs, including research, advocacy, and family services.
Huntington Disease Awareness Month since 1992
HD Awareness Month traces its roots to May 1992 when President George H. W. Bush issued a proclamation recognizing the significance of this cause. His statement urged the nation to learn about HD and show compassion for those affected by it—a message that continues to resonate 33 years later.
For more information about Huntington’s Disease Awareness Month and how to become involved, visit www.hdsa.org.
Huntington’s Disease Explained
Huntington’s disease (HD) is a fatal genetic disorder that causes the progressive breakdown of nerve cells in the brain. It deteriorates a person’s physical and mental abilities during their prime working years and currently has no cure. Every child of a parent with HD has a 50/50 chance of inheriting the faulty gene. Today, approximately 41,000 Americans show symptoms of HD, with more than 200,000 at risk.
HDSA was founded in 1967
The Huntington’s Disease Society of America is the premier nonprofit organization dedicated to improving the lives of everyone affected by HD. From community services and education to advocacy and research, HDSA is the world’s leader in providing help for today and hope for tomorrow. HDSA was founded in 1967 by Marjorie Guthrie, wife of folk legend Woody Guthrie, who lost his life to HD complications at age 55.